Global webinars on research participation

The next webinar will be on 8 February 2019

On 8 February 2019, ADI will run our second global webinar: Let's Talk about Dementia Research: Global Barriers and Access to Trials. 

This webinar will compare the research available in low- and middle- income vs. high- income countries, building on the themes of our first webinar, and drilling down into new areas such as access to research, particularly focusing on barriers, enablers, and opportunities.

We will discuss practical options for people living in low- and middle-income countries who want to participate in dementia research and trials.

Join the webinar here and sign-up to our mailing list for further announcements.

Why should you join us?

 

On November 21, 2018, ADI held the first in a series of global webinars: Let’s Talk About Dementia Research: Demystifying Trials, Access and Understanding.

The idea of the series is to create a unique opportunity for the general public and Alzheimer and dementia associations to engage directly with health and social care professionals, as well as companies involved in dementia research and clinical trials.

As far as we know, no other webinar has provided such ‘public to professional’ access before.

Each webinar in the series aims to link and build upon the others. We hope to encourage lively debate and knowledge exchange; stimulating interest in research and trials to search for a disease-modifying treatment.


The first webinar, Let’s Talk About Dementia Research: Demystifying Trials, Access and Understanding built on the findings from a recent Generation Program global survey of 10,000 people and ADI’s World Alzheimer Report 2018, opening with an overview and discussion on what dementia research is: Why do we need clinical trials and research (many now focusing on non-symptomatic volunteers or early/mild stages); what are the practicalities for clinicians ‘on the ground'; and what is the lived experience of families taking part in trials?

We heard from the pharmaceutical industry, researchers and clinicians conducting research and clinical trials, as well as primary care health professionals supporting patients and families. Most importantly, we heard stories of people living with dementia and their care partners about their lived experience. 

Follow-on webinars will drill down into issues that spark particular interest with our audience – both public and professionals. We will be guided by these interests organically, but hope to cover issues such as the divide of research opportunities between lower- and middle-income countries (LMICs) and higher income countries (HICs).

The series will conclude with a look ahead at overcoming some of these barriers and hopes for the future.

If you, or anyone you know, are interested in joining our webinars, please sign-up for email updates about ADI news, events and activities, including information about subsequent webinars.

ADI would like to thank Roche for their generous contribution towards the running of our dementia research webinars, enabling us to open up the debate on this important topic.

Where next?