Review of Dementia Registries supports global knowledge

31 May 2017 - The Dementia Collaborative Research Centre and Centre for Healthy Brain Ageing at the University of New South Wales have published a systematic a review of dementia registries in Alzheimer’s and Dementia. The review follows the recommendations of the report, Dementia registries around the world: a review and recommendations, that registries are established in every country, standardised internationally and provided with sufficient funding to be sustainable.  

Dementia registries are a system of storing and monitoring all information on a particular disease or health condition. While dementia registries are common for many diseases including cancer and cardiovascular disease, collecting data on patients with dementia is still relatively new.

Someone in the world develops dementia every 3 seconds. Developing dementia registries and ensuring that data is standardised between different countries can support future research by providing a rich source of data to achieve improvements in clinical practise, care and policy.   

Dementia Registries may also include details of groups or individuals who could provide valuable support for clinical trials that can lead research into care, prevention and potential treatments for the disease.

The report was authored by Professors Henry Brodaty, Karolina Krysinska and Perminder Sachdev with the support of Alzheimer’s Disease International and the Global CEO Initiative on Alzheimer’s Disease

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