ADI News en ADI announces “Let’s Talk About Dementia Research” webinar series <p><strong>23 October 2018</strong> - On November 21, 2018 ADI will hold the first in a series of three webinars; creating a unique opportunity for the general public and Alzheimer and dementia associations to engage directly with health and social care professionals and companies involved in dementia research and clinical trials.&nbsp;<a href="/webinars-research-participation">[read more]</a></p> Tue, 23 Oct 2018 14:12:54 +0000 Annie.Bliss 3661 at World Alzheimer Report 2018: The state of the art of dementia research: New frontiers <p><a href="/research/world-report-2018"><img alt="" src="/sites/default/files/img/war2018-cover.png" style="float: right; margin: 5px; height: 155px; width: 110px;" /></a><strong>21 September 2018</strong> - The World Alzheimer Report 2018, released today, addresses key questions in dementia research, relating to: basic science, diagnosis, drug discovery, risk reduction, epidemiology and care. Find out what the leading lights in dementia research globally have to say. <a href="/research/world-report-2018">[read more]</a></p> Thu, 20 Sep 2018 23:01:00 +0000 Annie.Bliss 3657 at World’s largest Alzheimer’s survey reveals most adults believe a cure will be developed in their lifetime <p><strong>18 September 2018</strong>&nbsp;-&nbsp;A new survey released today by Banner Alzheimer&rsquo;s Institute (BAI), Novartis, and Amgen, in association with Alzheimer&rsquo;s Disease International, reveals that most adults believe a cure for Alzheimer&rsquo;s will be found within their lifetime.</p> <!--break--> <p>The survey, which includes 10,000 adults across 10 countries, aims to raise awareness about how volunteers can take part in clinical studies to benefit Alzheimer&rsquo;s research during World Alzheimer&rsquo;s Month.</p> <p>Key findings of the survey include:</p> <ul> <li><em>91% believe of adults the solution to tackling diseases lies in medical research</em></li> <li><em>79% are willing to participate </em><em>in Alzheimer&rsquo;s research but three-quarters (75%) have no idea how to get involved</em></li> <li><em>62% are worried that they may develop Alzheimer&rsquo;s disease</em></li> </ul> <p>With these insights, we hope to raise awareness about how volunteers can take part in clinical studies to benefit Alzheimer&rsquo;s research this World Alzheimer&rsquo;s Month.</p> <p>Paola Barbarino, Chief Executive Officer at ADI, said: &ldquo;<em>At present, there is no cure and limited treatment options for Alzheimer&rsquo;s, but this survey clearly shows that people are willing to participate in research to help treat and to hopefully find a cure. We need to demystify and remove awareness barriers to participation in medical research, making all suitable candidates aware of how they can get involved.&rdquo;&nbsp; </em></p> <p>Novartis, Amgen and BAI are sponsors of the Alzheimer&rsquo;s Prevention Initiative&rsquo;s Generation Program, which is evaluating investigational treatments to help prevent or delay the onset of Alzheimer&rsquo;s. The Program is enrolling volunteers aged 60-75 who are at higher risk of developing Alzheimer&rsquo;s but do not currently have or show signs of the disease.</p> <p>For more information about the Generation Program, visit&nbsp;<a href=""></a> or contact the &lsquo;med info&rsquo; department at a nearby Novartis or Amgen office.</p> <ul> <li><a href="">Read Amgen&#39;s media&nbsp;release</a></li> <li><a href="">Read Novartis&#39; media release</a></li> </ul> <h3><strong>Where next?</strong></h3> <ul> <li><a href="">Research webinars</a></li> <li><a href="">Clinical trials</a></li> <li><a href="">World Alzheimer&rsquo;s Month</a></li> </ul> Tue, 18 Sep 2018 07:00:00 +0000 Annie.Bliss 3655 at ADI and ITN Productions release documentary film ‘Every 3 seconds’ <p><strong>31 August 2018 </strong>- To support the 2018 World Alzheimer&rsquo;s Month campaign, Alzheimer&rsquo;s Disease International (ADI) in partnership with ITN Productions have released the documentary film &lsquo;Every 3 seconds&rsquo; to help raise awareness of global impact of dementia.</p> <!--break--> <p>The feature length documentary, presented by National News Correspondent, Duncan Golestani, focuses on research, care and technology innovation. It is hoped, by raising awareness, the&nbsp;film will help reduce stigma surrounding dementia and help tackle one of the world&rsquo;s biggest healthcare challenges.</p> <p>Paola Barbarino, Chief Executive of ADI, said:&nbsp;<em>&ldquo;Only 30 governments out of over 194 WHO member states have so far developed a plan on dementia. There are further plans in the pipeline, but Governments must act now to implement and fund their own plans and policies to combat this serious and costly global epidemic.&nbsp;Investment in dementia research is also critical, from understanding the basic science, through diagnosis research to drug development. In the absence of a disease modifying treatment there must also be a strong focus on care research to improve the quality of life of those living with dementia.&rdquo;</em></p> <p>This documentary comes at a crucial time for galvanising government action on strategic healthcare planning. Every 3 seconds someone in the world develops dementia, and the 50 million people living with dementia is expected to triple by 2050. World Alzheimer&rsquo;s Month is an opportunity to highlighting the impact of dementia and addressing the widespread stigma around this disease.</p> <p>To view the Every 3 Seconds documentary, visit: <a href=""></a></p> <ul> <li><a href="">Read the media release</a></li> </ul> <h3>Where next?</h3> <ul> <li><a href="">Every 3 Seconds full documentary</a></li> <li><a href="">Every 3 Seconds full documentary with Spanish substitles</a></li> <li><a href="">World Alzheimer&rsquo;s Month campaign website</a></li> </ul> Fri, 31 Aug 2018 09:39:51 +0000 Annie.Bliss 3652 at ADI and GCOA launch new Dementia Innovation Readiness Index <p><strong>27 July 2018</strong> - ADI and Global Coalition on Aging (GCOA) have launched the 2018 Dementia Innovation Readiness Index during ADI&rsquo;s 33rd International Conference in Chicago. The Index analyzes the readiness of countries to develop and deploy dementia solutions into their healthcare, policy and social frameworks.</p> <p><a href="/sites/default/files/pdfs/index-2018.pdf"><img alt="" src="/sites/default/files/img/readiness-index-2018-cover.png" style="width: 233px; height: 302px; margin: 5px; float: right;" /></a>The Index evaluates innovation readiness across 10 categories and identifies specific opportunities and challenges to promote innovation. Among the countries profiled this year, the 65+ population is highest in Argentina at 11.6% and lowest in Saudi Arabia at 3.3%. In comparison, 17.9% of the G7 countries&rsquo; population is over 65. And yet, developing countries will be home to nearly 70% of people with dementia by 2050 as the result of population aging.</p> <p>Other key findings from the Index include:</p> <ul> <li>Under-diagnosis is a barrier to fully understanding and treating dementia. Better diagnostic tools and healthcare professionals specializing in geriatrics and dementia will be critical for ensuring countries can adequately address the individual and societal burden brought by Alzheimer&rsquo;s and other dementias. In Brazil, for instance, community health workers are trained to identify signs of dementia and refer patients to specialists.</li> <li>The regulatory environment has been slow to evolve with the urgency of the disease. Well-funded and efficient regulatory agencies must be prioritized to ensure therapies can reach people with dementia in a timely manner.</li> <li>The business community is not integrated into strategies to provide solutions for dementia and should be encouraged and incentivized to bring innovations in medicines and new care models, including maximizing the potential of technology and data.</li> <li>As seen in India, prevention campaigns can serve as an effective and cost-efficient strategy to raise awareness and help the general public and healthcare providers better prepare for the projected increases in dementia.</li> <li>Planning now will ensure these countries with younger populations are prepared for the coming demographic shift. For instance, Saudi Arabia, with currently only 3.3% of its population over 65, has a unique opportunity to innovate now so that in 20 years, solutions that lessen or eliminate the burden of dementia will already be in place.</li> </ul> <h4>Read the reports</h4> <ul> <li><a href="/sites/default/files/pdfs/index-2018.pdf">Dementia Innovation Readiness Index 2018</a></li> <li><a href="/sites/default/files/pdfs/index-G7-progress.pdf">G7 Progress Report</a></li> </ul> Mon, 30 Jul 2018 00:13:31 +0000 Michael.Lefevre 3649 at Latest Global Perspective Newsletter <p><a href="/sites/default/files/pdfs/global-perspective-july-2018.pdf"><img alt="" src="/sites/default/files/img/newsletter-mar-18_0.png" style="margin: 5px 10px; float: right; width: 80px; height: 114px;" /></a>The July 2018 issue of our Global Perspective newsletter is now available. Read our latest news on the World Health Assembly, new ADI publications, the STRiDE research project and member activities from around the world. <a href="/sites/default/files/pdfs/global-perspective-july-2018.pdf">[read it now]</a></p> Fri, 20 Jul 2018 18:28:11 +0000 Michael.Lefevre 3646 at ADI and Karolinska Institutet launch report on estimates of informal care <!--break--> <p><strong>4 July 2018 </strong>- ADI and Karolinska Institutet today launched a timely&nbsp;report focussing on global estimates of informal care. &nbsp;<a href="/adi/pdf/global-estimates-of-informal-care.pdf"><img alt="" src="/sites/default/files/pdfs/Screen%20Shot%202018-07-03%20at%2015.41.48.png" style="width: 200px; height: 285px; float: right; margin: 5px;" /></a></p> <p>This&nbsp;report&nbsp;sets out to answer some of the questions raised&nbsp;in the 2015 World Alzheimer&nbsp;Report.&nbsp;In the 2015&nbsp;Report, ADI&nbsp;presented estimates of the global societal economic impact of dementia. The global costs then were estimated to be US$ 818 billion, a figure now (2018) surpassing US$ 1 trillion per year.&nbsp;Of these costs, 40% were related to informal care,&nbsp;40% to the social&nbsp;care&nbsp;sector and&nbsp;20% to the medical sector. However, these costs were distributed in an uneven way: 87% occurred in&nbsp;high-income countries, and in low-income countries, costs of informal care&nbsp;constituted 69% of the costs, while the corresponding cost for high-income countries were 38%.</p> <p>The primary aims of this new&nbsp;report&nbsp;are to:</p> <ul> <li>present global estimates of informal&nbsp;care&nbsp;hours,&nbsp;</li> <li>compare the global distribution of&nbsp;caregiver time estimates with that of costs</li> <li>highlight gender patterns.</li> </ul> <p>Although a complex area, it is evident that the contribution of informal caregivers is substantial. Most informal&nbsp;caregivers are family members and many&nbsp;caregivers express positive experiences in this situation. However, being an informal&nbsp;caregiver can also be stressful in terms of coping, depression, impact on social networks and work patterns and morbidity.</p> <p>In this&nbsp;report&nbsp;we estimate that the&nbsp;annual global number of informal&nbsp;care hours provided to people with dementia living at home was about <strong>82 billion hours</strong>&nbsp;in 2015, equating to 2,089 hours per year or 6 hours per day.&nbsp;This is the equivalent of more than <strong>40 million full-time workers</strong> <strong>in 2015</strong>,&nbsp;a figure that will increase to <strong>65 million full-time workers by 2030</strong>.</p> <p>As 60% of people with dementia live in lower and middle-income countries (a proportion that continues to increase), and as almost all (96%) of people with dementia in lower and middle-income countries live at home, this has a significant&nbsp;<strong>impact on the global distribution of caregiver time</strong>.</p> <p>The&nbsp;report&nbsp;also reveals the continued disproportionate <strong>impact of dementia on women</strong>.&nbsp;Women contribute to 71% of the global hours of informal&nbsp;care, with the highest proportion in low-income countries.</p> <p>Societal changes already in progress all over the world &ndash; shifting family structures, generational split, migration and the increasing participation of women in the workforce &ndash; will, for dementia&nbsp;care, result in a shift from informal&nbsp;care&nbsp;to a greater need for different kinds of formal&nbsp;care&nbsp;(home support, day&nbsp;care, long-term&nbsp;care). This scenario presents a great challenge for society in terms of financing, staff recruitment and training. Employers will also need to be aware of the growing number of employees that will be affected by&nbsp;caregiving and recognize that the&nbsp;caregiving role may need further formal recognition in labour legislation.</p> <p>The report was authored by&nbsp;Prof Anders Wimo, Aging Research Center, Department of Neurobiology, Care Sciences and Society (NVS),&nbsp;Karolinska Institutet and Stockholm University; Prof Serge Gauthier, McGill Center for Studies in Aging, Douglas Mental Health Research Institute, Montreal; and Prof Martin Prince, Global Observatory for Ageing and Dementia Care, Institute of Psychiatry, Psychology and Neuroscience, Health Service and Population Research Department, King&#39;s College London.</p> <ul> <li><a href="/adi/pdf/global-estimates-of-informal-care.pdf">Read the report</a></li> <li><a href="/media/180704">Read the media release</a></li> </ul> Tue, 03 Jul 2018 14:47:01 +0000 Kate.Elliott 3645 at Report from OECD shows countries are failing to diagnose dementia <!--break--> <p><img alt="" src="/sites/default/files/img/Screen%20Shot%202018-06-08%20at%2009.38.14.png" style="width: 200px; height: 267px; float: right; margin: 5px 10px;" /><strong>12 June 2018 -</strong> At a joint event today, supported by&nbsp;Alzheimer&rsquo;s Disease International (ADI), the Organisation for Economic Co-Operation and Development (OECD) have released a new report on the state of dementia diagnosis and care, <a href=""><em>Care needed: Improving the lives of people with dementia</em></a>.</p> <p>The event will bring&nbsp;together a group of experts: people living with dementia, carers, policy makers, practitioners, and others, to discuss how the quality of care for people with dementia can be improved, and how health systems today can prepare to tackle dementia in the coming years.</p> <p>The report gives an overview of dementia care strategies, in particular, what OECD countries have done to improve dementia care at every stage.</p> <p>It also finds, however, that countries are failing to diagnose dementia, in part because many primary care doctors lack the necessary skills and training. Despite primary care services often being the first port of call, physicians average just 12 hours of dementia training during medical school and primary care doctors correctly identify only around 50-75% of dementia cases. Fewer than 40% of OECD member countries are able to estimate diagnosis rates nationally, and only two countries (the United Kingdom and Denmark) have set specific targets to improve their diagnosis rates.</p> <p>As populations continue to age, the prevalence of dementia is expected to rise to 41 million by 2050 in OECD countries, and rise globally to 152 million by 2050. In the absence of a treatment or a cure for dementia, the pressures on health and social care will also increase. Improving the lives of people with dementia through diagnosis and care is not only as an important goal in itself but also because failure to do so will significantly drive up future costs.</p> <ul> <li><a href="">Read the media release</a></li> </ul> Tue, 12 Jun 2018 09:00:00 +0000 James.Smith 3642 at Swedish Government commits to develop national dementia strategy <!--break--> <p><strong>06 June 2018</strong> - The Swedish government announced the intended launch of a national Dementia Strategy in 2018 during the World Health Assembly in May. <a href="">Alzheimer Sverige</a> has advocated for the Strategy for several years, welcoming the news in the same week as an official <a href="/news/adi-report-marks-1st-anniversary-of-global-plan-on-dementia">ADI side event </a>urged more WHO Member States to adopt plans on dementia.</p> <p>It is estimated that 150,000 people are living with dementia in Sweden. The Swedish Government expects this figure to increase by over 50% by 2050. The number of individuals aged over 80 years is also expected to increase substantially, accounting for 15% of the total population, or a million people, by 2030.</p> <p>Lena Hallengren, Swedish Minister for Children, the Elderly and Gender Equality explained the underlying intention from the Swedish Government:<em> &quot;Equality in care for persons with dementia will require a national standardized care-process applied by all Swedish communities, equal for all Swedish persons with dementia, going forward. </em></p> <p><em>&quot;In order to find and help persons with dementia from first diagnosis to care and treatment, a substantial competence-lift is required within the health-system ... Currently, most care of patients with dementia takes place in the social services sector targeted at the elderly, in the severe stages of the disease, where assisted care-home staff are not trained to discern or meet the needs of the person with dementia or the surrounding care-givers. The Dementia Strategy therefore consists of key areas; cooperation between health-care and social services, staff-quality, competence building, evaluation and follow up, support for care-givers, involvement of civil society and digitalization.&quot;</em></p> <p>The Swedish National Board of Health and Welfare has been allocated the task of creating&nbsp;this standardised care-process, including looking at the long-term strategic issues that may arise in the finalised Swedish Dementia Strategy.&nbsp;A first outline of the work plan is expected to be presented to the Swedish Government in October 2018, to run to June 2022.</p> <p>Globally, 32 countries and territories have adopted a plan on dementia. Many have worked with Alzheimer associations and ADI to develop key components and share best practice. In 2017, the World Health Organization adopted a <a href="/dementia-plans/global-plan">Global plan</a> with a target of 146 Member States developing their own policies on dementia. Sweden is the 28th Member State to commit to a plan since 2001.</p> <p><img alt="" src="/sites/default/files/img/MAP_WHO%20Member%20States%20plans_0.png" style="margin: 5px 25px; width: 640px; height: 470px;" /></p> <p>Alzheimer Sverige have assembled substantial knowledge of care and quality of life issues for people with neuro-degenerative conditions since the 1980s, working in cooperation with global NGOs like ADI.</p> <p>Krister Westerlund, President of Alzheimer Sverige said, <em>&quot;Working for Alzheimer Sweden, I am delighted to see our that government has taken this decision! I was happy to read about that they put emphasis on a health-system competence-build with a long-term focus, and in that process, that the Swedish government are opening up to a European and International school of thought about neuro-degenerative diseases.&quot;</em></p> <p>The future Swedish dementia strategy has much to gain from knowledge about individuals with Mild Cognitive Impairment and those with early onset dementia in particular. The association urge that the Strategy also includes attention to quality of life through all the stages of dementia.</p> <h3>Where next?</h3> <ul> <li><a href="">Alzheimer Sverige</a></li> <li><a href="/dementia-plans">Dementia plans</a></li> <li><a href="/news/adi-report-marks-1st-anniversary-of-global-plan-on-dementia">ADI report marks 1st anniversary of the adoption of the Global plan on dementia</a></li> </ul> Fri, 08 Jun 2018 06:00:00 +0000 James.Smith 3640 at Programme for the ADI conference in Chicago now available <p><strong>31 May 2018 </strong>&ndash; The <a href="">full programme</a> for ADI 2018 is now available on our conference website, including details of our esteemed plenary speakers and our parallel sessions.</p> <!--break--> <p><img alt="" src="/sites/default/files/img/ADI-2018-announcement.jpg" style="margin: 5px 20px; width: 250px; height: 354px; float: right;" />This year, there will be a diverse range of presentations from technology and innovation to the impact of dementia on women; care and psychosocial interventions to scientific progress and much more.</p> <p>The ADI Conference is the longest-running and most diverse dementia conference in the world. We are excited to bring this interesting and diverse event to Chicago, USA, connecting a global community in a vibrant American city.&nbsp;</p> <p>Everyone with an interest in dementia - researchers, scientists, clinicians, allied healthcare professionals, people living with dementia, family members, care professionals, staff and volunteers of Alzheimer associations and others - are welcome to join, share ideas and learn.</p> <ul> <li><a href="">Programme</a></li> <li><a href="">Registration</a></li> </ul> <p><a href=""><img alt="" src="/sites/default/files/pdfs/Screen%20Shot%202018-05-25%20at%2010.59.15_0.png" style="width: 550px; height: 342px;" /></a></p> <h3>Where next?</h3> <ul> <li><a href="">33rd International Conference of ADI in Chicago, USA, 26-29 July 2018</a></li> <li><a href="/ADI-conference">Previous conferences</a></li> </ul> Thu, 31 May 2018 10:49:39 +0000 Kate.Elliott 3639 at