10/66 Dementia Research Group Alzheimer's Disease International

The 10/66 Public Data Archive

The 10/66 project aims to create an evidence base to empower advocacy, raise awareness about dementia and other NCDs, and ensure that the health and social care needs of older people are anticipated and met.
All investigators in the 10/66 group are committed to establish an anonymised data sharing archive with monitored public access. Our aim is to maximise the scientific output from the data that has been collected - to do this we are encouraging investigators external to our group to consider applying to use the data for secondary analyses of their own devising.

Proposals for access to the data archive are NOW welcome. The current list of either: received proposals, and papers under preparation or published can be downloaded from click here (in MS Word format) (as of December 2011)
Access will be approved by an oversight committee, consisting of PI's (Principal Investigator) from all 10/66 centres and independent members. The over-riding principle is that consent will not be unreasonably withheld from ethical, scientifically valid proposals*.

Please click here for the recent update on approved data requests.

External investigators will be asked to sign a Data Agreement Form click here stipulating the terms and conditions for using the 10/66 dataset. Please Note: A new Agreement Form is required for each new proposal request.

How to apply to use the 10/66 Dementia Research Group dataset:

  1. Familiarise yourself with the 10/66 study protocol. You can download all interviews, data entry files, algorithms, protocols, training materials and manuals from our website click here, the complete list of all variables (with labels) of our dataset click here and a full list of our consent forms & information sheet click here
  2. Download and fill in the '10/66 Manuscript Submission Form' click here
  3. Email the form and a copy of your brief CV to dementiaresearchgroup1066@kcl.ac.uk

You will receive a message from the 10/66 DRG acknowledging the receipt of you application.
The deadline for processing is 30 days from the date of submission.
We will contact you with the group decision and if approved with the final date when the dataset will be available.

*Please note that the local investigators reserve their right to withdraw their local dataset

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Latest 10/66 News

  • The Independent Dementia Supplement (May 2014) on pages 6 and 7 used data from the Alzheimer's Disease International. Policy brief for heads of government: The global impact of dementia 2013-2050.

  • Professor Martin Prince's service to the field of psychogeriatrics has been recognised by the International Psychogeriatric Association IPA in its 2011 round of Distinguished Service Awards. Prof Prince’s work was recognised during the IPA 2011 International Congress at The Hague on 6th -9th September. Link

  • Incidence data – now available for open access! The 10/66 incidence studies have now been completed in Cuba, DR, Mexico, Peru, Venezuela, China, including mortality data for India. It followed 11,718 older people free of dementia at baseline with 34,718 person years of follow-up. This is a unique data and one of the largest studies of the incidence of dementia yet conducted. To apply to use this data click here...

  • "Dementia and Risk Reduction:...". The World Alzheimer's Report 2014 More...

  • Dissemination: a 10/66 Chinese movie on dementia(26/02/09) Watch the trailer
    More about policy

  • Latest Papers Published (Nov 10) More...

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