ADI News http://www.alz.co.uk/news en Call for Europe-wide dementia strategy http://www.alz.co.uk/news/call-for-europe-wide-dementia-strategy <p><strong>20 February 2015</strong> - Alzheimer Europe has launched an online sign-up campaign to gather support for the creation of a European Dementia Strategy. This campaign follows the launch of the Glasgow Declaration, which also calls for the development of national dementia plans in every European country.</p> <!--break--> <p>In addition, the Glasgow Declaration, which was adopted by Alzheimer Europe&#39;s 26 member organisations in October 2014, puts pressure on world leaders to recognise dementia as a public health priority and develop a global action plan on dementia. Alzheimer&#39;s Disease International signed in support of the declaration at the Glasgow meeting.</p> <p>While it is only possible to sign up online if you live in Europe, it is hoped that this campaign will have an impact globally and that, if a regional strategy is developed, other world regions may follow.</p> <p>You can sign the declaration through the <a href="http://www.alzheimer-europe.org/Policy-in-Practice2/Glasgow-Declaration-2014">Alzheimer Europe website</a>.</p> Fri, 20 Feb 2015 08:15:49 +0000 Sarah.Kerr 2544 at http://www.alz.co.uk G7 Dementia Legacy event in USA http://www.alz.co.uk/news/g7-bethesda <p><strong>18 February 2015</strong> - The fourth G7 Legacy event was held in the United States on 11 February, following a two-day conference on the state of the science at the National Institutes of Health in Bethesda, Maryland (near Washington DC).</p> <!--break--> <p><img alt="[Photo of Marc Wortmann speaking about Importance of Global Collaboration in Bethesda]" src="/sites/default/files/img/marc-g7-bethesda-s.jpg" style="width: 300px; height: 240px; float: right; margin: 7px;" title="Marc Wortmann speaking in Bethesda - photo by Heather Snyder" />The event was a half day meeting and included updates from the World Health Organization on its research prioritisation project, which ADI is also involved in (first results will come out in March 2015), and from the Organisation for Economic Development and Cooperation (OECD) on big data and on dementia research budgets from the G7 countries. The USA has the largest budgets, but these are still far behind other major disease areas.</p> <p>The G7 countries and the European Union gave updates as well. Interestingly Canada, Japan and the UK are now planning big cohort studies looking at multiple chronic diseases, including dementia, and their risk factors.</p> <p>The Canadian government has started a Dementia Friends programme with the Alzheimer Society of Canada, using the experiences of Japan and the UK. France reported on the launch of their new plan for neurodegenerative diseases: Alzheimer&rsquo;s and other dementias, Parkinson&rsquo;s, MS, ALS and Huntington&rsquo;s disease. It has 4 priorities, 12 issues and 96 actions.</p> <p>Germany started local dementia alliances in September 2014 and more than 1000 local info sites are now enrolled. They are also implementing Dementia Care Managers who serve as link with patients and the health system. The new centre on neurodegenerative diseases (DZNE) has a budget of &euro;80m a year and has created partnerships with other European countries, Canada and the USA.</p> <p>The US congress has asked what it would cost to reach the 2025 goal of finding a cure or disease modifying treatment. It will be interesting to see the answer. At the same time, the Alzheimer&rsquo;s Association released a report on how much could be saved if dementia onset can be delayed by 5 years, and it is a massive amount.</p> <p>Italy launched its plan in November, despite the challenge with the role of its regions. National plan areas are prevention, network of services, integrated care, research, ethics, fight against stigma and integrated services.</p> <p>Japan also launched a new &lsquo;Orange plan&rsquo; on 27 January 2015. They calculated two estimates: one with stable prevalence rates and another with increases in diabetes rates. The new plan has 7 pillars and aims for people with dementia living with dignity.</p> <p>Finally, the UK is working on a number of initiatives and partnerships. One is &#39;Join Dementia Research&#39;, a database where people can register to be part of research. It was also clear at the event, behind the scenes, that the UK is still the driving force behind the G7 initiative.</p> <p>The European Union is spending an impressive amount on research through its programmes JPND (Joint Programming on Neurodegenerative Diseases), Horizon 2020, Human Brain Project and IMI, a big public-private partnership. Patient organisations are now involved in policy making.</p> <p>In the afternoon the World Dementia Council met to talk about the future of this global initiative and it is fair to say that this is not yet completely clear, but hopefully there will be some future initiatives. At the same time the Alzheimer&rsquo;s Association (US) and ADI hosted a meeting with non-profit organisations who fund research in the USA and Europe. One of the things Alzheimer&rsquo;s Association has set up with the US government is the International Alzheimer&rsquo;s Disease Research Portfolio (IADRP), which has now 30 agencies participating and 4000 studies in its database. This is a useful collaboration to map out what everybody is doing and avoid duplication. As a result, Alzheimer organisations that fund research get to know each other better and a number of collaborations have started, even across borders (USA, Canada and UK; UK and Netherlands).</p> <p>This was a very good event to attend and I really noticed a much bigger appetite for collaboration between these organisations than in the past.</p> <p>Marc Wortmann<br /> Executive Director, ADI</p> Wed, 18 Feb 2015 10:06:25 +0000 Michael.Lefevre 2524 at http://www.alz.co.uk Alzheimer Society of Canada targets women with 'The 72%' campaign http://www.alz.co.uk/news/alzheimer-society-of-canada-targets-women-with-72-campaign <p><strong>13 January 2015</strong> - A new awareness campaign by the Alzheimer Society of Canada has revealed 72% of people living with dementia and 70% of dementia caregivers in the country are women. The organisation is calling on women to educate themselves to spot the signs and know where to turn to for help and support.</p> <!--break--> <p>As part of their national Alzheimer Awareness Month, the Alzheimer Society of Canada has launched &#39;The 72%&#39; campaign to inform women in their 40&rsquo;s and older about the warning signs of Alzheimer&rsquo;s disease and how they can access help and support. &nbsp;</p> <p>The organisation has also estimated that women also account for 70% of family caregivers, highlighting the tremendous toll caregiving can take when women are also having to hold down jobs and raise families.</p> <p>During January, the Alzheimer Society are urging women to visit <a href="http://www.alzheimer.ca/the72percent">www.alzheimer.ca/the72percent</a> to take a moment and learn the signs and share them with friends and family members.</p> <h3>Where next?</h3> <ul> <li><a href="http://www.alzheimer.ca/en">The Alzheimer Society of Canada</a></li> <li><a href="http://www.alz.co.uk/info/early-symptoms">Early symptoms of dementia</a></li> </ul> Tue, 13 Jan 2015 11:07:48 +0000 Harriet.Payne 2504 at http://www.alz.co.uk In memory of Jerome H. Stone http://www.alz.co.uk/news/in-memory-of-jerome-h-stone <!--break--> <p><strong>A message from all at Alzheimer&#39;s Disease International</strong><img alt="" src="/sites/default/files/img/6jan.jpg" style="width: 200px; height: 147px; margin: 5px; float: right;" /></p> <p><strong>6 January 2015 </strong>- It is with great regret that we inform you that Jerome H. Stone, founder and Honorary Vice-President of Alzheimer&rsquo;s Disease International (ADI), passed away on the 1 January 2015 at the age of 101.</p> <p>As the President of the Alzheimer&rsquo;s Association in the USA, Jerry Stone brought together the associations who founded ADI in 1984 in Washington DC. Over the years Jerry visited many of the ADI Conferences and when interviewed for ADI&rsquo;s 25th anniversary book in 2009, he said: &ldquo;I am proud of all these people that I have worked with and that ADI has grown far beyond my influence.&rdquo; He gave his last formal presentation for ADI at the Alzheimer University on Public Policy and Campaigning in Chicago in 2010.</p> <p>Jerry became involved with the Alzheimer&rsquo;s movement when his wife, Evelyn, was diagnosed with the disease in 1970. Jerry recognized the need for an organisation that would provide support for people with dementia and their caregivers and advance research toward treatment and ultimately, a cure.</p> <p>Jacob Roy Kuriakose, Chairman of ADI said: &ldquo;Jerry Stone inspired us all to make the Alzheimer&rsquo;s and dementia movement truly global, to be ambitious and think big and reach out to the global institutions. We will miss him a lot.&rdquo;</p> <p>Marc Wortmann, Executive Director of ADI added: &ldquo;Jerry was very active in his role as Honorary Vice-President of ADI. I met with him a few times in Chicago in the last few years and was always touched by his ongoing enthusiasm and knowledge of the organisation.&nbsp; I feel very privileged that I was able to meet Jerry and to learn from him.&rdquo;</p> <p>In 2006, Jerry received the very first ADI Award at the 22nd ADI conference in Berlin. Today we join together to send our deepest condolences to his family and to the many people in the global dementia community who knew Jerry and considered him a both a friend and an inspiration. We are eternally grateful for his huge contribution to the global dementia movement and thankful for his personal involvement in the establishment and development of ADI as an organisation.</p> <h3>Where next?</h3> <ul> <li> <div class="pageTitle"> <p class="h3petition"><a href="http://www.alz.org/jeromestone/overview.asp">In Memory of Our Founder and Friend</a> - Alzheimer&#39;s Association</p> </div> </li> </ul> Tue, 06 Jan 2015 07:50:40 +0000 Harriet.Payne 2484 at http://www.alz.co.uk A look back at ADI's 30th anniversary year http://www.alz.co.uk/news/look-back-at-adis-30th-anniversary-year <!--break--> <p><strong>A message from ADI Chairman Dr Jacob Roy Kuriakose</strong><img alt="" src="/sites/default/files/img/jacob-roy.jpg" style="width: 200px; height: 249px; margin: 5px; float: right;" /></p> <p><strong>18 December 2014 </strong>- 2014 was another busy year for Alzheimer&#39;s Disease International (ADI), working alongside our extensive network of Alzheimer associations to make dementia a global health priority. This year there have been some positive developments, marking another step forward to achieving our vision of a better world for people living with dementia and their caregivers.</p> <p>In October 2014 ADI celebrated its <a href="http://www.alz.co.uk/adi-30-years">30th anniversary</a>, marking three decades of global collaboration and advocacy. From its humble beginnings in 1984, ADI is now recognised as the global voice on dementia. Aptly, our 30th year featured some major developments, kicked off by the commitments made at the close of the <a href="https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/265868/2901669_G8_DementiaSummitCommunique_acc.pdf">G8 Dementia Summit</a> in December last year.</p> <p>The subsequent Legacy Events in London, Canada and Japan and the formation of the <a href="http://dementiachallenge.dh.gov.uk/category/wdc/">World Dementia Council</a> have helped to raise dementia&rsquo;s positioning on the global health agenda. To this end, ADI launched the <a href="https://twitter.com/GADAAlliance">Global Alzheimer&rsquo;s and Dementia Action Alliance (GADAA)</a>, with a view to engage the wider community, building commitment and actions at a national and international level and sharing best practices globally.</p> <p>In May the <a href="http://www.alz.co.uk/ADI-conference-2014">ADI International Conference</a> was held in San Juan, Puerto Rico, in a region that will be one of the most impacted by dementia&rsquo;s increasing prevalence. Earlier this month we met in New Delhi, India, for the <a href="http://www.aprc2014-india.com/">17th Asia Pacific Regional Conference</a>, launching the event in tandem with a new report, <em><a href="http://www.alz.co.uk/dementia-in-the-asia-pacific">Dementia in the Asia Pacific Region</a>.</em></p> <p>Dementia and risk reduction has featured highly on the agenda this year, with September&rsquo;s <a href="http://www.alz.co.uk/world-alzheimers-month-2014">World Alzheimer&rsquo;s Month</a> campaign looking at ways we might be able to reduce our chances of developing the disease with brain healthy lifestyles. The <a href="http://www.alz.co.uk/research/world-report-2014">World Alzheimer Report 2014</a> was well received by the scientific community and policy makers, urging both national and international planning to include dementia alongside other non-communicable disease (NCD) programs. At the start of the year, ADI was accepted as a member of the <a href="http://www.ncdalliance.org/">NCD Alliance</a>, a network of civil society organizations in more than 170 countries around the world.</p> <p>Month on month, we receive reports from member associations that <a href="http://www.alz.co.uk/alzheimer-plans">national dementia plans</a> are being developed in their countries. Most recently, Costa Rica, Mexico and Cuba became some of the first low and middle income countries to launch dementia plans, with similar commitments also in development in several other such countries around the world. National Alzheimer associations continue to be the driving force behind these vital policies, which go a long way to secure investment in dementia care and provision for the future.&nbsp;</p> <p>Dementia friendly communities continue to be a hot topic, with several countries committing to bringing the program to their own communities in 2014. We hope that in time this will extend to all countries, including low and middle income nations. Dementia knows no economic, geographic or social boundaries, so these commitments mark another crucial step in creating a dementia friendly world, one which recognises dementia as a global health priority.</p> <p>Here&#39;s to another busy and successful year.</p> <h3>Where next?</h3> <ul> <li><a href="http://www.alz.co.uk/adi-30-years">30 years of ADI</a></li> <li><a href="/sites/default/files/pdfs/GADAA%20summary%20sheet.pdf">Global Alzheimer&#39;s and Dementia Action Alliance (GADAA) factsheet</a> - (PDF, 1 page)</li> </ul> Thu, 18 Dec 2014 09:00:00 +0000 Harriet.Payne 2444 at http://www.alz.co.uk Global Perspective newsletter for December http://www.alz.co.uk/global-perspective-newsletter-december-2014 <p><a href="/adi/pdf/gp201412.pdf"><img alt="" src="/sites/default/files/img/gp201412.png" style="width: 90px; height: 127px; float: left; margin: 4px 5px;" /></a>The December 2014 issue of our <em>Global Perspective</em> newsletter is now available. This issue includes a report on September&#39;s World Alzheimer&#39;s Month, regional meetings and the launch of the World Alzheimer Report 2014, as well as regular features. <a href="/adi/pdf/gp201412.pdf">[Read it now]</a></p> Fri, 05 Dec 2014 08:00:00 +0000 Michael.Lefevre 2424 at http://www.alz.co.uk Global Dementia Legacy Event highlights care as a main priority http://www.alz.co.uk/news/global-dementia-legacy-event-highlights-care-as-main-priority <!--break--> <p><strong>A message from ADI Executive Director Marc Wortmann</strong></p> <p><img alt="" src="/sites/default/files/img/marc-wortmann.jpg" style="width: 150px; height: 223px; margin: 5px; float: right;" /><strong>7 November 2014 </strong>- Experts in dementia care and risk reduction met in Japan this week for the third Global Dementia Legacy Event. Prime Minister Shinz┼Ź Abe from Japan highlighted the importance of dementia care provision and the commitment of the Japanese government to take global action against dementia.</p> <p>On the evening before the Legacy Event, ADI and&nbsp;<a href="http://www.alzheimer.or.jp">Alzheimer&rsquo;s Association Japan</a> (AAJ) organized a joint side event with the support of Eli Lilly &amp; Company about care models around the world and the importance of diagnosis.</p> <p>Several people living with dementia attended the Legacy Event and three members of the Japanese Dementia Working Group of AAJ spoke at the official reception and the plenary sessions. Yasuhisa Shiozaki, Japanese Minister of Health, Labour and Welfare, announced that the government will launch a new dementia strategy updating the &lsquo;Orange Plan&rsquo; that was published in 2012. ADI and AAJ were pleased to hear that the input of people with dementia will be a key pillar of the plan.</p> <p><a href="http://www.oecd.org/health/dementia.htm">The <span class="st">Organization for Economic Co-operation and Development</span> (OECD)</a> launched a report on dementia care at the meeting: &#39;Dignity in Dementia: How better policy can improve the lives of people with dementia&#39;. The report states that dementia is the fastest growing cause of disability in the world today, and emphasises the need to develop and implement policies to improve dementia care, and to share learnings with the international community.</p> <p>I had the pleasure of co-chairing a session on dementia friendly communities with ADI medical and scientific advisory panel member, Professor Akira Homma. There are lots of these initiatives, especially in Europe and Asia, such as the programme to train Dementia Supporters that has now been running for 7 years in Japan, providing training to 5.5 million people. During this session, Sabine Jansen from ADI member Deutsche Alzheimer Gesellschaft also presented to the audience on awareness campaigns from Germany.</p> <p>During the event ADI also presented the <a href="https://twitter.com/GADAAlliance">Global Alzheimer&rsquo;s and Dementia Action Alliance (GADAA)</a>. This Alliance is a mechanism to include other international NGOs outside the dementia field in awareness raising and societal acceptance of dementia, a model that was developed in the UK and most recently Germany.</p> <p>The event also highlighted innovative care solutions using information and communications technology (ICT) such as robotics and bio-computers, which can help support people with dementia in their daily life and increase independence. The importance of person centred care was also&nbsp;emphasised by Professor Dawn Brooker from the University of Worcester and Profesor Graham Stokes from Bupa, who demonstrated the link between a high quality of care and the decreased need for antipsychotic treatment.</p> <p>Sessions on prevention and risk reduction highlighted intervention studies COGNICISE from Japan and THISCE from Taiwan, both combining physical exercise and cognitive training and other interventions combined to delay the onset of dementia, an approach that looks promising given the results of the FINGER study from Finland that was presented earlier this year. Professor Martin Prince presented the conclusions from the <a href="http://www.alz.co.uk/research/world-report-2014">World Alzheimer Report 2014 <em>Dementia and Risk Reduction</em></a> and stressed that dementia should now can be seen as a preventable condition and included in public health initiatives to reduce risks of chronic diseases like diabetes, cancer and cardiovascular diseases.</p> <p>J&uuml;rgen Schreftlein from the European Commission presented results from <a href="http://ec.europa.eu/health/major_chronic_diseases/docs/2014_implreport_alzheimer_dementias_en.pdf">the first European dementia action plan</a>. A second plan will be prepared for 2015-2018 under the leadership of the Scottish government on behalf of the UK. The <a href="http://www.neurodegenerationresearch.eu/">Joint Programming for Neurodegenerative Diseases</a> (JPND) is a very successful coordination mechanism between 28 countries and 70% of the budget is spent on dementia research. From Canada we learned that they have enhanced their research efforts and strongly believe in collaboration across borders with specific programmes. Canada are also involved in JPND and has special programmes with the USA, France and China as well, and have launched an awareness website aimed at teenagers: <a href="http://lifeandminds.ca/whendementiaisinthehouse/">When Dementia is in the House</a>.</p> <p>At the closing address, Dr Saxena, Director of Mental Health, Neurological Disorders and Substance Abuse of the World Health Organization (WHO) announced that it will organise the first <a href="http://www.who.int/nmh/conference-on-dementia-march2015-concept-note.pdf">WHO Ministerial Conference on Global Action Against Dementia</a> in Geneva at the start of March 2015. All Ministers of Health of the 193 member states will be invited, alongside other international organizations in official relations with WHO, including ADI. Crucially, this meeting will expand the efforts from the G7 countries to the whole world.</p> <p>The USA will organise the next G7 Legacy Event in conjunction with a scientific conference from 9-11 February 2015. The first two days will review the science on Alzheimer&rsquo;s disease and other dementias, followed by a Legacy Event on the 11 February. The <a href="http://www.alz.org/">Alzheimer&rsquo;s Association</a> and ADI are planning a side event for the afternoon on the 11 February on the research efforts of the Alzheimer charities around the world.</p> <p>We look forward to another successful event in the US in February and will continue to emphasize the importance of increasing awareness and providing better care for the 44 million people living with dementia not just in the G7 countries, but all around the world.</p> <h3>Where next?</h3> <ul> <li><a href="/sites/default/files/pdfs/GADAA%20summary%20sheet.pdf">Global Alzheimer&#39;s and Dementia Action Alliance (GADAA) factsheet</a> - (PDF, 1 page)</li> </ul> Fri, 07 Nov 2014 11:26:50 +0000 Harriet.Payne 2384 at http://www.alz.co.uk Number of people living with dementia in the Asia Pacific region set to triple by 2050 http://www.alz.co.uk/news/number-of-people-living-with-dementia-in-asia-pacific-region-set-to-triple-by-2050 <p><strong>7 November 2014</strong> -<strong> </strong>A new regional report by Alzheimer&#39;s Disease International (ADI) has revealed that by 2050, more than half of the total number of people with dementia worldwide will live in the Asia Pacific region, urging governments and policy makers to recognise the need for increased awareness, education and research into dementia.</p> <!--break--> <p>The new report, <em>Dementia in the Asia Pacific Region</em>, estimates that the number of people with dementia in the region will increase from 23 million in 2015 to almost 71 million by 2050. Globally, the current figures stand at 44 million people in 2013, rising to 76 million in 2030 and 135 million by 2050.</p> <p>The report also highlights the tremendous costs associated with dementia in the Asia Pacific region, a figure which currently stands at US$185 billion. It is estimated that 70% of this amount occurs in the advanced economies, which only account for 18% of the regional prevalence of the disease. These figures are likely to increase as the numbers of people with dementia grow, burdening the health systems of countries in the region, especially those in low and middle income nations.</p> <p>Four major challenges are outlined in the report: the limited awareness of dementia, the false perception that dementia is a natural part of ageing, inadequate human and financial resources to meet the care needs of people with dementia, and inadequate training for professional carers.</p> <p><a href="/dementia-in-the-asia-pacific">Find out more and download a copy of the report here</a></p> Thu, 06 Nov 2014 18:30:00 +0000 Harriet.Payne 2344 at http://www.alz.co.uk World Alzheimer's Month unites world in call for change http://www.alz.co.uk/news/world-alzheimers-month-unites-world-in-call-for-change <p><strong>21 October 2014 </strong>- This year World Alzheimer&rsquo;s Month focused on ways we may be able to help reduce our chances of developing dementia with the theme &lsquo;Dementia: Can we reduce the risk?&rsquo;. Alzheimer associations around the world focused campaigns on advocacy and public awareness with a packed month of activities. <a href="http://www.alz.co.uk/world-alzheimers-month-2014">[read more]</a></p> Tue, 21 Oct 2014 15:14:12 +0000 Harriet.Payne 2304 at http://www.alz.co.uk World Alzheimer Report 2014 reveals persuasive evidence for dementia risk reduction http://www.alz.co.uk/news/world-alzheimer-report-2014-reveals-persuasive-evidence-for-dementia-risk-reduction <p><strong>17 September 2014</strong> - The World Alzheimer Report 2014 <em>&lsquo;Dementia and Risk Reduction: An analysis of protective and modifiable factors&rsquo;</em> calls for dementia to be integrated into both global and national public health programmes alongside other major non communicable diseases (NCDs).</p> <!--break--> <p>The report reveals that control of diabetes and high blood pressure as well as measures to encourage smoking cessation and to reduce cardiovascular risk, have the potential to reduce the risk of dementia even in late-life. The report found that diabetes can increase the risk of dementia by 50%. Obesity and lack of physical activity are important risk factors for diabetes and hypertension, and should, therefore, also be targeted.</p> <p>While cardiovascular health is improving in many high income countries, many low and middle income countries show a recent pattern of increasing exposure to cardiovascular risk factors, with rising rates of diabetes, heart disease and stroke.</p> <p>Smoking cessation is strongly linked in the report with a reduction in dementia risk. For example, studies of dementia incidence among people aged 65 years and over show that ex-smokers have a similar risk to those who have never smoked, while those who continue to smoke are at much higher risk.</p> <p>Coinciding with the launch of the report, survey data released by Bupa has shown over two thirds (69%) of people around the world* are concerned about getting dementia in later life, but many are unclear about the causes and the actions they can take to potentially reduce their risk.</p> <p><a href="http://www.alz.co.uk/research/world-report-2014">Find out more and download a copy of the report here</a></p> Fri, 12 Sep 2014 13:21:53 +0000 Harriet.Payne 2164 at http://www.alz.co.uk